Community and lived experience
Participant-led stories about Crohn’s, colitis and other long-term conditions, with no pressure to share private health information.
Community · Wellbeing · Practical experience
Planned community and media programme.
FUS is planning a practical media series about life with Crohn's, colitis and other long-term conditions, sailing, food aboard and honest product reviews.
In development — subject to funding and safe delivery
The purpose
Purpose and intended outputs.
The proposed series would share practical information about sailing with IBD and other long-term conditions and provide material for community, funder and partner use. The first planned sailing pilot remains for adults with Crohn's or colitis; wider participation would require consultation, evaluation, suitability checks and appropriate funding.
Exercise and wellbeing
Appropriately paced sailing and outdoor activity, including fatigue, confidence, rest, hydration and adapting a role aboard.
Food aboard
Provisioning, simple meals, storage, hydration and personal experience — including responsible exploration of fermented foods such as kefir.
Products and practical reviews
Marine, outdoor, travel and wellbeing products installed, used and assessed in genuine conditions aboard Suerte.
Filming aboard Suerte
Proposed filming formats.
Proposed filming may document delivery and provide material for reports and agreed partner communications, subject to consent and operational approval.
Drone
Suerte under sail, coastal settings and the scale of the experience.
GoPro
Onboard action, participant viewpoints and practical demonstrations.
Photography
People, products, installations, voyages and partner assets.
Editing
Clear stories, captions, accessibility and reusable short and long formats.
Proposed equipment reviews
Product installation and review process.
Reviews would explain the need, show installation or preparation, demonstrate real use and report strengths and limitations.
Editorial independence: equipment or funding would never guarantee a positive review. Paid or gifted content would be clearly labelled.
- Define the need. What problem is being addressed for the vessel, crew or participant?
- Show preparation. Compatibility, cost, tools, safety and alternatives.
- Film the work. Installation or preparation, including difficulties and corrections.
- Use it properly. Demonstrate the product in normal onboard conditions where safe.
- Review honestly. Strengths, limitations, value and suitability.
- Follow up. Report durability and issues discovered over time.
Consent and disclosure
Filming, consent and disclosure safeguards.
All filming would follow FUS safeguarding, data-protection, safety and commercial-disclosure rules.
Participant consent
Appearing on camera would always be optional and separate from access to FUS activities.
Operational priority
Vessel operation and participant welfare would always take priority over filming.
Health-content boundaries
Lived experience would be distinguished from clinical guidance. FUS would not make cure claims or advise people to stop treatment.
Dietary information
No single diet works for everyone with IBD. Significant changes should be discussed with an IBD team or dietitian.
Commercial disclosure
Paid, gifted, affiliate and otherwise commercially influenced content would be labelled clearly.
Editorial independence
Reviews would remain honest, evidence-aware and useful to the intended audience.
Full board and funder paper
Community, Wellbeing and Ethical Media Promotion.
Read the proposal covering planned media activity, consent, costs and delivery controls.
Proposed £22,000 sustainability stage
Partnership and funding enquiries.
FUS welcomes discussions with community contributors, responsible brands and media specialists. The £22,000 sustainability stage is planned and not secured.